I'm on my way to the hospital to get screened for multiple sclerosis. All I ask is that you keep me in your thoughts. I need all the good vibes I can get.

theonlycuregirl · 3 months

Good Vibes, Good Vibes

I was diagnosed six years ago, and currently in a flare. I'm here if you want to talk.

MrImSoGreat · 3 months

Thank you everyone for your well wishes. I just got home from the hospital. The MRI went OK. I'm a little claustrophobic so... Yeah.

Plus the noises the MRI machine makes sounds like dubstep drops.

So, in conclusion... Confined space + dubstep = my personal hell. It was terrible.

Now, the 24 hour or so wait.

Nap time.

defenestrate_ · 3 months

My wife was diagnosed with MS eight years ago at age 24. She's got a very mild case of Relapsing/Remitting MS. She will have occasional visual artifacts that she describes as pretty floating sparkles. She has occasional numbness or hypersensitivity in her arms and legs, and she's tired often.

Keeping cool in the summer is very important.

It is manageable.

It is ok to be upset about your body attacking itself. Even though your body may be betraying you, still do your best to take care of it.

Not knowing what might happen in the next flare up is the biggest fear.

Copaxone was rough for her, Avonex (or Tysabri- double blind clinical trial) is easier; but everyone is different.

I find this to be a helpful mantra

Good fortune to you, and ask for some Ativan before your next MRI!

Edit: there is also r/multiplesclerosis but it's a pretty small subreddit.

sandysquirrel · 3 months

I was diagnosed officially about six months ago, but I've had it for about 14 years. I saw you asked what MS feels like... that's a really hard question to answer since MS has so many symptoms and not everybody gets the same ones. Fatigue, tingling, muscles spasms, slurred speech, memory issues, bladder issues, pain, etc, etc, etc.

Trust me, I know how scary it is when you first find out that there's a possibility that you have MS. Instead of focusing on the horror stories you've heard try to remember that there are hundreds of thousands of people out there with MS living a normal everyday life, and that there has been some great progress in new treatments and possibilities for future cures.

Good luck to you, I hope your MRI comes out clean. If you need to talk, pm me if you want, or check out r/multiplesclerosis. They're pretty helpful and supportive over there.

blo0p · 3 months

I was diagnosed 2 years ago at 19

It's not fun to keep track of medication and having to go to the doctor so often can become a hassle but it is manageable.

There hasn't been a single thing I've wanted to do that MS has stopped me from accomplishing yet. (Except having a drink when I'm out with friends but that isn't as hard as some people would believe it is)

Hang in there and hopefully whatever you had was a one time thing!

Edit: Also if you have any questions I'd be happy to answer them all

Kravlin · 3 months

My grandmother has had ms the entire time I've been alive. I've watched her fight it my entire life.

Good luck. You'll be in my thoughts

jbkarmaworks · 3 months

My mom was diagnosed with MS when she was 21.. it's not easy to watch. Just keep your head up and you'll be alright. Best of luck

woodycanuck · 3 months

I went through this a few years ago but thankfully came out all clear. It's scary waiting, good luck to you!

lionheartednyhc · 3 months

Good luck. Diagnosed when I was 10 (am 25 now). Where abouts are you?

ironpony · 3 months

My mother was diagnosed about 2 years or so ago. It seems people have very different levels of symptoms with MS, but she mainly has balance issues. Trouble walking on un-even surfaces has been most obvious, she can't walk down a sandy beach with out someone holding on, yet can make it across a paved parking lot pretty well. Standing for long periods is out - so she has a hard time kicking ass in the kitchen like she used to.

Consider the good vibes sent -

_dustinm_ · 3 months

Incoming good vibes headed your way!

jasontimmur · 3 months

Be well, friend.

waxlrose · 3 months

scumbag reddit community

mocks anyone who believes in god

asks for good vibes

orisha · 3 months

Good luck man, the best for you.

ObscureSaint · 3 months

Keeping you in my thoughts right now. :)

xhybridsoldier · 3 months

Best of luck!

glucoseboy · 3 months

Hang in there.

civilian11214 · 3 months

I'm not 100 % sure what that is, but my thoughts are with you. Hope you are safe throughout the procedure. I cannot imagine. Positive vibes, coming your way.

ben1am · 3 months

Good vibes. :)

thebeegirl · 3 months

Hey will you update? Crossing my fingers for you.

lichtheilt · 3 months

good vibes!! my whole house is thinking of you :) Imgur

num1polak · 3 months

My mother has had it diagnosed for over 10 years now, it's been tough but she is still going strong! Best of luck to you.

She has RRMS and has been through some tough spots so if you have any questions feel free to ask.

Hopefully everything turns out well though, you're in my thoughts.

Fauster · 3 months

In a worst case scenario: get on a stem cell trial waiting list ASAP. It is highly probable that this disease will be very treatable soon. And don't assume you have it for sure unless they see a clear progression. Keep your head up! Everything is going to be okay.

justlikeheaven83 · 3 months

At first, a diagnosis of MS can be an overwhelming blow. But at least you have an answer for why you are feeling the way you do. My mother was diagnosed 6 years ago after years and years or pain, deteriorating health, and endless medical tests. After finally getting a name for what had been plaguing her for years, she felt empowered to find resources and support. She started her own local support group and another on FB and offers support and guidance to others suffering from the disease.
It's not the end of the world and I hope your health improves and you start to feel better despite a diagnosis or not. Good vibes!

erasmosis · 3 months

Love and prayers. Positive mental attitude is everything. Also, ganja is great for MS.

papajohn56 · 3 months

I don't play Vibraphone, but if I did I would be right now. Good luck

arito · 3 months

Good luck President Bartlet!

steve-d · 3 months

I have a friend who has had it for years and she has stayed active. You would never guess she has it because she has been able yo manage it so well. She has flare ups and sometimes takes a couple days off work, but she has a great handle on things!

Babygoose · 3 months

Any news yet?

daftroses · 3 months

Did you hear about that guy MrImSoGreat? I hear people on reddit care about him.

Please do an AMA when you're all better (:

someswedishgirl · 3 months

I just read this thread and now i'm all worried for you. I hope everything went really well at the neurologist crosses fingers

So many many hugs!

MrImSoGreat · 3 months

UPDATE: 02/08 - Just got home from the neurologist appointment. The white substance is a 4mm sized lesion in my right frontal lobe. Doctor did a lot of balance and reflex testing. Explained that since there was only one single lesion detected, she says there is a low probability of MS. However, she wants to test further on what this lesion could mean. Meanwhile, she wants me the see a psychologist/therapist for depression/anxiety, as well as do a sleep study for sleep apnea. Also... It turns out I am legally blind. She suggested I go see an eye doctor because of the odd dilation of my pupils and the fact that after I take my glasses of, my vision is scored at 2800, I believe that's what it was. She is concerned about the lesion, as far as I could gather.

daringlunchmeat · 3 months

Update? How are you feeling?

lolraid · 3 months

Will do, man :(

p0wertrash · 3 months

I was diagnosed with MS back in July. It hit me out of nowhere. On Monday I had a headache behind my right eye. By Friday, I was blind in my right eye. Two MRI's later, they made the diagnosis. My vision returned to almost-normal. The only remaining issue I have is that my right eye does not react as fast as my left eye. Residual nerve damage from the optic neuritis. My doctor put me on Gilenya. It's a once-daily tablet I have to take every morning. A lot of people have had some pretty bad side effects from Gilenya, but for me, so far so good. I haven't had any relapses since my vision episode in July.

I hope all goes well for you. I know, the news will take your feet out from under you. It really made me reevaluate everything. I now try to make every moment count for me, my kids, and my wife. I try not to let them know how worried I really am, but I guess you just have to play the cards you are dealt.

If you ever need someone to talk to, hit me up.

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